Статья

Recovery from COVID-19: a sprint or marathon? 6-month follow-up data from online long COVID-19 support group members

Anouk W. VaesDept of Research and Development, Ciro, Horn, The NetherlandsYvonne M.J. GoërtzDept of Research and Development, Ciro, Horn, The NetherlandsMaarten Van HerckDept of Research and Development, Ciro, Horn, The NetherlandsFelipe MachadoDept of Research and Development, Ciro, Horn, The NetherlandsRoy MeysDept of Research and Development, Ciro, Horn, The NetherlandsJeannet M. DelbressineDept of Research and Development, Ciro, Horn, The NetherlandsSarah Houben‐WilkeDept of Research and Development, Ciro, Horn, The NetherlandsSwetlana GaffronViscovery Software GmbH, Vienna, AustriaDieter MaierBiomax Informatics AG, Planegg, GermanyChris BurtinREVAL - Rehabilitation Research Center, BIOMED - Biomedical Research Institute, Faculty of Rehabilitation Sciences, Hasselt University, Diepenbeek, BelgiumRein PosthumaDept of Research and Development, Ciro, Horn, The NetherlandsNicole P. H. van LoonDept of Internal Medicine, Maastricht University Medical Center (MUMC+), Maastricht, The NetherlandsFrits M.E. FranssenDept of Research and Development, Ciro, Horn, The NetherlandsBita HajianDept of Research and Development, Ciro, Horn, The NetherlandsSami O. SimonsDept of Respiratory Medicine, Maastricht University Medical Centre (MUMC+), Maastricht, The NetherlandsJob F. M. van BovenDept of Clinical Pharmacy and Pharmacology, Groningen Research Institute for Asthma and COPD (GRIAC), University Medical Center Groningen, University of Groningen, Groningen, The NetherlandsFrederikus A. KlokDept of Medicine - Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, The NetherlandsBart SpaetgensDept of Internal Medicine, Maastricht University Medical Center (MUMC+), Maastricht, The NetherlandsClaire M.H. PinxtDept of Internal Medicine, Maastricht University Medical Center (MUMC+), Maastricht, The NetherlandsLimmie Y.L. LiuDept of Internal Medicine, Maastricht University Medical Center (MUMC+), Maastricht, The NetherlandsGeertjan WesselingYvonne SpiesLung Foundation Netherlands, Amersfoort, The NetherlandsHerman VijlbriefLung Foundation Netherlands, Amersfoort, The NetherlandsAlex J. van ‘t HulDept of Pulmonary Disease, Radboud University Medical Center, Nijmegen, The NetherlandsDaisy J.A. JanssenDept of Health Services Research, Care and Public Health Research Institute, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The NetherlandsMartijn A. SpruitDept of Research and Development, Ciro, Horn, The Netherlands

2021en

ABI

Аннотация

Background It remains unknown whether and to what extent members of online “long COVID” peer support groups remain symptomatic and limited over time. Therefore, we aimed to evaluate symptoms in members of online long COVID peer support groups up to 6 months after the onset of coronavirus disease 2019 (COVID-19)-related symptoms. Methods Demographics, symptoms, health status, work productivity, functional status and health-related quality of life were assessed about 3 and 6 months after the onset of COVID-19-related symptoms in members of online long COVID peer support groups. Results Data from 239 patients with a confirmed COVID-19 diagnosis (83% women; median (interquartile range) age 50 (39–56) years) were analysed. During the infection, a median (interquartile range) of 15 (11–18) symptoms was reported, which was significantly lower 3 and 6 months later: 6 (4–9) and 6 (3–8), respectively (p<0.05). From 3 to 6 months follow-up, the proportion of patients without symptoms increased from 1.3% to only 5.4% (p<0.001). Patients also reported a significantly improved work productivity (work absenteeism and presenteeism: 73% versus 52% and 66% versus 60%, respectively), self-reported good health (9.2% versus 16.7%), functional status (mean± sd Post-COVID-19 Functional Status scale: 2.4±0.9 versus 2.2±1.0) and health-related quality of life (all p<0.05). Conclusion Although patients with confirmed COVID-19, who were all members of online long COVID peer support groups, reported significant improvements in work productivity, functional status and quality of life between 3 and 6 months follow-up, these data clearly highlight the long-term impact of COVID-19, as approximately 6 months after the onset of COVID-19-related symptoms a large proportion still experienced persistent symptoms, a moderate-to-poor health, moderate-to-severe functional limitations, considerable loss in work productivity, and/or an impaired quality of life. Action is needed to improve the management and healthcare of these patients.

Перевод пока недоступен

Идентификаторы

DOI: 10.1183/23120541.00141-2021

Цитирования и источники

Цитирований: 2Использованных источников: 0

Показатели — AkademScholar