РОЛЬ «ПАСПОРТА ДИТИНИ З ГЛАУКОМОЮ» У ПІДВИЩЕННІ ІНФОРМОВАНОСТІ ТА ДОТРИМАННІ ЛІКУВАЛЬНОГО РЕЖИМУ БАТЬКАМИ ДІТЕЙ З ВРОДЖЕНОЮ ГЛАУКОМОЮ

Congenital glaucoma is a leading cause of irreversible visual impairment and disability in children, requiring early detection, timely surgical intervention, and long-term follow-up. Treatment effectiveness depends substantially on parental awareness and adherence to medical recommendations, which is particularly critical in the context of a chronic disease course. Objective. To evaluate the effectiveness of the "Child with Glaucoma Passport" as an educational and informational tool aimed at improving parental awareness and compliance, and at optimizing the monitoring and treatment of children with congenital glaucoma. Materials and Methods. The study enrolled parents of children with newly diagnosed congenital glaucoma admitted to the ophthalmology department of the clinic of Tashkent Pediatric Medical Institute. Participants were allocated to the intervention group (n = 40), who received the passport prior to hospitalization, and the control group (n = 42), who did not use this tool. Parental compliance was assessed using a mobile application questionnaire and supplemented by the assessments of attending ophthalmologists and anesthesiologists. Results. Use of the "Child with Glaucoma Passport" significantly improved parental awareness, readiness for surgical treatment, adherence to medical recommendations, and regularity of follow-up visits (p < 0.05). High compliance was observed in 65% of parents in the intervention group compared with 38% in the control group. The sensitivity of the method was 96% and the specificity was 85%. Statistically significant differences between the groups were maintained at the 6-month follow-up assessment. Conclusions. The "Child with Glaucoma Passport" is an effective and accessible tool for enhancing parental compliance and optimizing long-term monitoring of children with congenital glaucoma. Its implementation improves physician-family communication, increases treatment efficacy, and is recommended for broad adoption in pediatric ophthalmological practice.

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